Home > Diseases and Conditions > Genetic Disorders > Cystic Fibrosis > Organizations
Organizations
|
|
|
Boomer Esiason Foundation
A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
http://www.esiason.org
|
Canadian Cystic Fibrosis Foundation
Support and resources. Located in Toronto, Ontario.
http://www.cysticfibrosis.ca/
|
Cystic Fibrosis Foundation
Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
http://www.cff.org/
|
Cystic Fibrosis Nurses: the International Specialist Group
Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.
http://www.cfnurses.net
|
Cystic Fibrosis Victoria Inc
Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events
http://www.cysticfibrosisvic.org.au/
|
Cystic Fibrosis Victoria Inc
Information about Cystic Fibrosis and the organisation, online chat room and message board.
http://www.cfv.org.au
|
Cystic Fibrosis Worldwide
International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.
http://www.iacfa.org/
|
Dream Holidays Charity
The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family.
http://www.cfdreamholidays.com/
|
European Cystic Fibrosis Society
ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis
http://www.ecfsoc.org/
|
European Cystic Fibrosis Thematic Network
Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
http://www.cfnetwork.be/
|
I.C.F.M.A.
A not-for-profit organization for increasing cystic fibrosis awareness.
http://www.icfma.org/
|
Lungs for Life Foundation
Provides financial assistance to cystic fibrosis and lung transplant patients.
http://Lungsforlife.org/
|
Milan Foundation
Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
http://www.milanfoundation.org
|
National Cystic Fibrosis Awareness Committee (NCFAC)
Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board.
http://www.cfawareness.org/
|
Reaching Out Foundation
Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
http://www.reachingoutfoundation.org/
|
